University of Hertfordshire

From the same journal

By the same authors

Standard

Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments. / Sampogna, Francesca; Finlay, Andrew Y.; Salek, Mir-Saeed Shayegan; Chernyshov, P; Dalgard, Florence; Evers, A W M; Linder, Dennis; Manolache, L; Marron, Servando E.; Poot, Francoise; Spillekom-van Koulil, S; Svensson, A; Szepietowski, Jacek C.; Tomas-Aragones, Lucia; Abeni, D.

In: Journal of the European Academy of Dermatology and Venereology, Vol. 31, 20.04.2017, p. 1429.

Research output: Contribution to journalReview article

Harvard

Sampogna, F, Finlay, AY, Salek, M-SS, Chernyshov, P, Dalgard, F, Evers, AWM, Linder, D, Manolache, L, Marron, SE, Poot, F, Spillekom-van Koulil, S, Svensson, A, Szepietowski, JC, Tomas-Aragones, L & Abeni, D 2017, 'Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments', Journal of the European Academy of Dermatology and Venereology, vol. 31, pp. 1429. https://doi.org/10.1111/jdv.14288

APA

Vancouver

Author

Sampogna, Francesca ; Finlay, Andrew Y. ; Salek, Mir-Saeed Shayegan ; Chernyshov, P ; Dalgard, Florence ; Evers, A W M ; Linder, Dennis ; Manolache, L ; Marron, Servando E. ; Poot, Francoise ; Spillekom-van Koulil, S ; Svensson, A ; Szepietowski, Jacek C. ; Tomas-Aragones, Lucia ; Abeni, D. / Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments. In: Journal of the European Academy of Dermatology and Venereology. 2017 ; Vol. 31. pp. 1429.

Bibtex

@article{deda74e171f14a5887dd8ed8d5e9be73,
title = "Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments",
abstract = "The patient is the centre of a web of relationships, and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents’ Index QoL Atopic Dermatitis, PiQoL-AD; QoL in primary care-givers of children with atopic dermatitis, QPCAD; Childhood Atopic Dermatitis Impact Scale, CADIS), two measured the impact of psoriasis in family members (Psoriasis Family Index, PFI; FamilyPso), one the impact of epidermolysis bullosa (Epidermolysis Bullosa Burden of Disease, EB-BoD), one of ichthyosis (Family Burden Ichthyosis, FBI), and one was generic for dermatological conditions (Family Dermatology Life Quality Index, FDLQI). The European Academy of Dermatology and Venereology quality of life taskforce recommends that the impact of a skin disease on family and care-givers should be measured as part of any thorough evaluation of the burden of a disease. Guidelines are given to choose the most appropriate instruments.",
author = "Francesca Sampogna and Finlay, {Andrew Y.} and Salek, {Mir-Saeed Shayegan} and P Chernyshov and Florence Dalgard and Evers, {A W M} and Dennis Linder and L Manolache and Marron, {Servando E.} and Francoise Poot and {Spillekom-van Koulil}, S and A Svensson and Szepietowski, {Jacek C.} and Lucia Tomas-Aragones and D Abeni",
year = "2017",
month = "4",
day = "20",
doi = "10.1111/jdv.14288",
language = "English",
volume = "31",
pages = "1429",
journal = "Journal of the European Academy of Dermatology and Venereology",
issn = "0926-9959",
publisher = "Wiley-Blackwell",

}

RIS

TY - JOUR

T1 - Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments

AU - Sampogna, Francesca

AU - Finlay, Andrew Y.

AU - Salek, Mir-Saeed Shayegan

AU - Chernyshov, P

AU - Dalgard, Florence

AU - Evers, A W M

AU - Linder, Dennis

AU - Manolache, L

AU - Marron, Servando E.

AU - Poot, Francoise

AU - Spillekom-van Koulil, S

AU - Svensson, A

AU - Szepietowski, Jacek C.

AU - Tomas-Aragones, Lucia

AU - Abeni, D

PY - 2017/4/20

Y1 - 2017/4/20

N2 - The patient is the centre of a web of relationships, and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents’ Index QoL Atopic Dermatitis, PiQoL-AD; QoL in primary care-givers of children with atopic dermatitis, QPCAD; Childhood Atopic Dermatitis Impact Scale, CADIS), two measured the impact of psoriasis in family members (Psoriasis Family Index, PFI; FamilyPso), one the impact of epidermolysis bullosa (Epidermolysis Bullosa Burden of Disease, EB-BoD), one of ichthyosis (Family Burden Ichthyosis, FBI), and one was generic for dermatological conditions (Family Dermatology Life Quality Index, FDLQI). The European Academy of Dermatology and Venereology quality of life taskforce recommends that the impact of a skin disease on family and care-givers should be measured as part of any thorough evaluation of the burden of a disease. Guidelines are given to choose the most appropriate instruments.

AB - The patient is the centre of a web of relationships, and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents’ Index QoL Atopic Dermatitis, PiQoL-AD; QoL in primary care-givers of children with atopic dermatitis, QPCAD; Childhood Atopic Dermatitis Impact Scale, CADIS), two measured the impact of psoriasis in family members (Psoriasis Family Index, PFI; FamilyPso), one the impact of epidermolysis bullosa (Epidermolysis Bullosa Burden of Disease, EB-BoD), one of ichthyosis (Family Burden Ichthyosis, FBI), and one was generic for dermatological conditions (Family Dermatology Life Quality Index, FDLQI). The European Academy of Dermatology and Venereology quality of life taskforce recommends that the impact of a skin disease on family and care-givers should be measured as part of any thorough evaluation of the burden of a disease. Guidelines are given to choose the most appropriate instruments.

U2 - 10.1111/jdv.14288

DO - 10.1111/jdv.14288

M3 - Review article

VL - 31

SP - 1429

JO - Journal of the European Academy of Dermatology and Venereology

JF - Journal of the European Academy of Dermatology and Venereology

SN - 0926-9959

ER -