Projects per year
Personal profile
Research interests
Patient and Public Involvement
Co-producton of COVID-19 Resources for People with a Learning Disability
Public Health
Overview
Helena has recently been working on two project with people with learning disabilities; the CAREVIS Project 'Beyond Words: Co-creation And Evaluation of a Visual REsource to support COVID-19 Vaccine uptake in people with Intellectual DisabilitieS' working with the charity 'Books Beyond Words' - Funded by the Royal College of Nursing Foundation. This has led to further funding from Hertfordshire Partnership NHS Foundation Trust to explore the communication needs of those with a learning disability who have symptoms of Long-COVID.
Previously, Helena worked in CRIPACC on two CLAHRC EOE projects from the PPI Theme from September 2014; 'IMPRESS' and 'Completing the Feedback Cycle'.
Helena was awarded a PhD studentship from the University West of England for her Thesis 'Meeting Food Hygiene Challenges in Older People: Meeting Health Assets for Health Promotion'. Awarded February 2016
Teaching specialisms
Clinical Trial Management and Research Governance
Education/Academic qualification
Food Hygiene Health Promotion, PhD, Meeting Food Hygiene Challenges in Older People: Mobilising Health Assets for Health Promotion, HEI: University of The West of England, Bristol
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Collaborations and top research areas from the last five years
Projects
- 6 Finished
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CLAN : Creative Learning Abilities Partnerships
Jones, J. (PI), Mathie, E. (CoI), Wythe, H. (CoI), Mengoni, S. (CoI), Attavar, R. (CoI), Wellings, A. (CoPI) & Riley, F. (CoI)
1/06/23 → 31/08/24
Project: Research
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PPI-04 Completing the Feedback Cycle II: Implementation and evaluation of a regional PPI feedback tool.
Mathie, E. (PI), Wythe, H. (Researcher) & Jones, J. (Researcher)
NIHR - National Institute for Health Research - Collaborations for Leadership In Applied Health Research and Care (CLAHRC), NIHR - National Institute for Health and Research
1/04/17 → 30/06/18
Project: Research
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'Impact of Patient and Public Involvement: Completing the Feedback Cycle'
Wythe, H. (PI)
1/04/16 → 31/03/17
Project: Research
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Evaluating the usefulness of a wordless picture book for adults with intellectual disabilities about the COVID ‐19 vaccination programme using co‐production: The CAREVIS study
Wythe, H., Attavar, R., Jones, J., Kelly, J., Palmer, C., Jenkins, L., Dekker, R., Fearns, D., Watkins, S., Hunt, A. & Pattison, N., 30 Mar 2024, In: Journal of Applied Research in Intellectual Disabilities. 37, 2, p. 1-11 11 p., e13203.Research output: Contribution to journal › Article › peer-review
Open AccessFile40 Downloads (Pure) -
Experiences of feeding young children with Down Syndrome: Parents’ and health professionals’ perspectives
Mengoni, S., Smith, B., Wythe, H. & Rogers, S., 6 Dec 2023, (E-pub ahead of print) In: International Journal of Developmental Disabilities. 9 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile37 Downloads (Pure) -
Adaptations to research within the intellectual disability population during the Covid-19 pandemic: Lessons learned from the CAREVIS study
Wythe, H. & Pattison, N., 21 Oct 2023, (E-pub ahead of print) In: Journal of Intellectual Disabilities : JOID. 7 p.Research output: Contribution to journal › Article › peer-review
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Reporting on patient and public involvement (PPI) in research publications: Using the GRIPP2 checklists with lay co-researchers
Jones, J., Cowe, M., Marks, S., McAllister, T., Mendoza, A., Ponniah, C., Wythe, H. & Mathie, E., 22 Jul 2021, In: Research Involvement and Engagement. 7, 1, p. 52 13 p., 52.Research output: Contribution to journal › Article › peer-review
Open AccessFile46 Downloads (Pure) -
The Role of Patient and Public Involvement Leads in Facilitating Feedback: “invisible work”
Mathie, E., Smeeton, N., Munday, D., Rhodes, G., Wythe, H. & Jones, J., 10 Jul 2020, In: Research Involvement and Engagement. 6, 1, p. 40 12 p., 209.Research output: Contribution to journal › Article › peer-review
Open AccessFile39 Downloads (Pure)