Projects per year
Personal profile
Research interests
Patient and Public Involvement
Co-producton of COVID-19 Resources for People with a Learning Disability
Public Health
Overview
Helena has recently been working on two project with people with learning disabilities; the CAREVIS Project 'Beyond Words: Co-creation And Evaluation of a Visual REsource to support COVID-19 Vaccine uptake in people with Intellectual DisabilitieS' working with the charity 'Books Beyond Words' - Funded by the Royal College of Nursing Foundation. This has led to further funding from Hertfordshire Partnership NHS Foundation Trust to explore the communication needs of those with a learning disability who have symptoms of Long-COVID.
Previously, Helena worked in CRIPACC on two CLAHRC EOE projects from the PPI Theme from September 2014; 'IMPRESS' and 'Completing the Feedback Cycle'.
Helena was awarded a PhD studentship from the University West of England for her Thesis 'Meeting Food Hygiene Challenges in Older People: Meeting Health Assets for Health Promotion'. Awarded February 2016
Teaching specialisms
Clinical Trial Management and Research Governance
Education/Academic qualification
Food Hygiene Health Promotion, PhD, Meeting Food Hygiene Challenges in Older People: Mobilising Health Assets for Health Promotion, University of The West of England, Bristol
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Collaborations and top research areas from the last five years
Recent external collaboration on country/territory level. Dive into details by clicking on the dots or
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CLAN : Creative Learning Abilities Partnerships
Jones, J., Mathie, E., Wythe, H., Mengoni, S., Attavar, R., Wellings, A. & Riley, F.
Project: Research
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PPI-04 Completing the Feedback Cycle II: Implementation and evaluation of a regional PPI feedback tool.
Mathie, E., Wythe, H. & Jones, J.
NIHR - National Institute for Health Research - Collaborations for Leadership In Applied Health Research and Care (CLAHRC), NIHR - National Institute for Health and Research
1/04/17 → 30/06/18
Project: Research
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'Impact of Patient and Public Involvement: Completing the Feedback Cycle'
1/04/16 → 31/03/17
Project: Research
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Experiences of feeding young children with Down Syndrome: Parents’ and health professionals’ perspectives
Mengoni, S., Smith, B., Wythe, H. & Rogers, S., 3 Oct 2023, (Accepted/In press) In: International Journal of Developmental Disabilities.Research output: Contribution to journal › Article › peer-review
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Reporting on patient and public involvement (PPI) in research publications: Using the GRIPP2 checklists with lay co-researchers
Jones, J., Cowe, M., Marks, S., McAllister, T., Mendoza, A., Ponniah, C., Wythe, H. & Mathie, E., 22 Jul 2021, In: Research Involvement and Engagement. 7, 13 p., 52.Research output: Contribution to journal › Article › peer-review
Open AccessFile27 Downloads (Pure) -
The Role of Patient and Public Involvement Leads in Facilitating Feedback: “invisible work”
Mathie, E., Smeeton, N., Munday, D., Rhodes, G., Wythe, H. & Jones, J., 10 Jul 2020, In: Research Involvement and Engagement. 6, 1, 12 p., 40.Research output: Contribution to journal › Article › peer-review
Open AccessFile28 Downloads (Pure) -
‘We’re passengers sailing in the same ship, but we have our own berths to sleep in’: Evaluating patient and public involvement within a regional research programme: An action research project informed by Normalisation Process Theory
Keenan, J., Poland, F., Boote, J., Howe, A., Wythe, H., Varley, A., Vicary, P., Irvine, L. & Wellings, A., 14 May 2019, In: PLoS ONE. 14, 5, 28 p., e0215953.Research output: Contribution to journal › Article › peer-review
Open AccessFile7 Citations (Scopus)10 Downloads (Pure) -
Regional Working in the East of England: Using the UK National Standards for Public Involvement
Mathie, E., Wythe, H., Munday, D., Rhodes, G., Vicary, P., Millac, P. & Jones, J., 6 Dec 2018, In: Research Involvement and Engagement. 4, 48, p. 48 12 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile4 Citations (Scopus)29 Downloads (Pure)