Projects per year
Personal profile
Overview
I am an Associate Professor in Research and Joint Head of the Centre for Health Services and Clinical Research. I have expertise in applied research with children and adults with learning disabilities and/or long-term health conditions. My methodological expertise includes clinical trials, process evaluations and mixed-methods research. My recent projects include:
- WIELD 2 - Self-management and quality of life for people with learning disabilities and epilepsy
- Making Positive Moves - Sustaining community living for people with learning disabilities
- READY - Process evaluation of exercise as an intervention for young people with depression
- Kaspar - The use of robots as interventions for children with autism spectrum disorder
- Feeding and eating in children with Down syndrome
- Health service provision for children with Down syndrome
Prior to joining the University of Hertfordshire, I was a Research Associate at the Open University (2012-14) working on projects with Early Support, which involved producing resources for parents of children and young people with special educational needs and disabilities and professionals who work with them. We also used qualitative methodologies to evaluate key working services for families.
I completed my BSc(Hons) in Psychology and MSc in Reading, Language and Cognition at the University of York. I also completed my PhD at York, which was titled 'The reciprocal relationship between oral language and reading skills in children with Down syndrome'. This was awarded in 2012 and I then took up a Project Co-ordinator post in the Centre for Reading and Language, where I worked on a number of different projects focusing on reading and language development in typical and atypical populations, including a validation study of the national phonics screening check.
Research interests
My research interests include:
- Learning disabilities, e.g. Down syndrome
- Self-management of long-term conditions, including mental and physical health
- Service provision for people with disabilities and their families
- Developmental psychology
- Process evaluation
- Clinical trials
I welcome expressions of interest from potential PhD students and my current/recent PhD students are researching:
- Feeding and eating in young children with Down syndrome
- Robot interventions in autism
- Experience of autism in Cyprus
Teaching specialisms
I teach on psychology programmes on subjects related to my research interests, particularly learning disabilities, developmental psychology, health research and psychological research methods.
I supervise placement and project students from undergraduate and postgraduate psychology courses in my areas of interest.
Commercial and public engagement
I am committed to public and patient involvement, maximising impact and working with the community. My roles and projects have included:
- Membership of the Research Committee for Down Syndrome Education International.
- Membership of the Down Syndrome Clinical Excellence Network hosted by the Royal College of Speech and Language Therapists
- Producing e-learning for the Royal College of Paediatrics and Child Health e.g. the 'Working Together Matters' session for 'Disability Matters' e-learning
- Volunteering as a governor at a primary school
- Member of the editorial board for British Journal of Learning Disabilities
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Collaborations and top research areas from the last five years
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READY: Clinical effectiveness and cost-effectiveness of exercise in adolescents with depression: a multi-site randomised controlled trial
Trivedi, D. (PI), Wellsted, D. (CoPI), Wyatt, S. (CoI), Bottoms, L. (CoI), Sharma, S. (CoI), Jones, J. (CoI), Mengoni, S. (CoI) & Howlett, N. (CoI)
1/11/19 → 31/10/23
Project: Research
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Using a picture booklet as a reasonable adjustment to improve epilepsy management for people with learning disabilities
Mengoni, S. (PI) & Parkes, G. (PI)
1/12/18 → 31/08/21
Project: Research
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Making positive moves: What support do people with Learning Disabilities need to remain living in the community after moving under the Transforming Care Programme. A qualitative longitudinal study.
Ellis-Caird, H. (CoI), Mengoni, S. (PI), Wellsted, D. (CoI) & Dixon, G. (Researcher)
1/09/20 → 31/08/23
Project: Research
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Feasibility study of a RCT to investigate the effectiveness of a humanoid robot to support social skills development in children with ASD
Sharma, S. (PI), Thakur, D. (CoI), Irvine, K. (CoI), Wellsted, D. (CoI), Robins, B. (CoI) & Mengoni, S. (Researcher)
1/12/16 → 30/11/18
Project: Research
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Feeding practices and eating behaviours in Down syndrome: Perspectives from healthcare professionals
Rogers, S. (PI) & Mengoni, S. (CoI)
1/08/18 → 30/01/19
Project: Other
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A randomised controlled trial of energetic activity for depression in young people (READY): a multi-site feasibility trial protocol
Howlett, N., Bottoms, L., Chater, A., Clark, A. B., Clarke, T., David, L., Irvine, K., Jones, A., Jones, J., Mengoni, S. E., Murdoch, J., Pond, M., Sharma, S., Sims, E. J., Turner, D. A., Wellsted, D., Wilson, J., Wyatt, S. & Trivedi, D., 4 Jan 2021, In: BMC Pilot and Feasibility Studies. 7, 1, p. 6 6.Research output: Contribution to journal › Article › peer-review
Open AccessFile42 Downloads (Pure) -
Wordless intervention for people with epilepsy and learning disabilities (WIELD): A randomised controlled feasibility trial
Mengoni, S., Gates, R., Parkes, G., Wellsted, D., Barton, G., Ring, H., Khoo, M. E., Monji-Patel, D., Friedli, K., Zia, A. & Durand, M.-A., 10 Nov 2016, In: BMJ Open. 6, e012993.Research output: Contribution to journal › Article › peer-review
Open AccessFile4 Citations (Scopus)179 Downloads (Pure) -
Evaluating health visitors’ existing knowledge of Down syndrome and the effect of a training workshop
Mengoni, S. & Redman, S., 1 Mar 2019, In: Journal of Policy and Practice in Intellectual Disabilities. 16, 1, p. 30-36 7 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Citation (Scopus)70 Downloads (Pure) -
"Sometimes, it just stops me from doing anything”: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers
Mengoni, S., Gates, R., Parkes, G., Wellsted, D., Barton, G., Ring, H., Khoo, M. E., Monji-Patel, D., Friedli, K., Zia, A. & Durand, M.-A., 11 Oct 2016, In: Epilepsy & Behavior. 64, Part A, p. 133-139 7 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile5 Citations (Scopus)136 Downloads (Pure) -
Self-management interventions for epilepsy in people with intellectual disabilities: A Scoping Review
Dannenberg, M., Mengoni, S., Gates, R. & Durand, M.-A., 1 Oct 2016, In: Seizure. 41, p. 16-25Research output: Contribution to journal › Article › peer-review
Open AccessFile11 Citations (Scopus)196 Downloads (Pure)