Co-designing improvements to systems of care and support to tackle inequality of access for people with Atypical Parkinsonian Syndromes: combining a system approach and realist review to inform a discrete choice experiment.

In this project, I aim to answer the questions: what are the reasons for inequality in provision of health and social care services to people with rare conditions and complex needs and their carers? How can service provision be improved?
The aims are to understand the nature of current provision of health and social care services in England to people with rare conditions and complex needs and their carers, identify assets of specific models of care and their transferability, and to co-design system improvement recommendations based on people preference.