Abstract
Background: A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good
or effective care into quality indicators that inform service development and evaluation.
Aim: To identify and critically evaluate quality indicators for end-of-life care in dementia.
Results: We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines.
Conclusions: We systematically derived and assessed a set of quality indicators using a robust framework that provides clear
definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex
interventions in end-of-life care in dementia.
or effective care into quality indicators that inform service development and evaluation.
Aim: To identify and critically evaluate quality indicators for end-of-life care in dementia.
Results: We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines.
Conclusions: We systematically derived and assessed a set of quality indicators using a robust framework that provides clear
definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex
interventions in end-of-life care in dementia.
| Original language | English |
|---|---|
| Pages (from-to) | 415-429 |
| Number of pages | 15 |
| Journal | Palliative Medicine |
| Volume | 33 |
| Issue number | 4 |
| Early online date | 11 Mar 2019 |
| DOIs | |
| Publication status | Published - 1 Apr 2019 |
Keywords
- Systematic review
- dementia
- end-of-life care
- healthcare
- palliative care
- quality indicators
- terminal care