A two-phase qualitative enquiry into storytelling’s potential to support palliative care patient-led change, using a systematic review approach

Research output: Contribution to journalArticlepeer-review

10 Downloads (Pure)

Abstract

A terminal diagnosis can diminish an individual’s sense of agency and identity. Leading change appears to restore a sense of agential self. The first phase of this literature review explores factors influencing patient-led change across the palliative care ecosystem. The second phase illuminates how storytelling can support palliative care patients in leading ecosystem-wide change. 35 studies were identified in Phase 1 and 36 in Phase 2. This research highlights the need to situate patient leadership activity within a palliative care ecosystem to understand factors likely to support or hinder patient leadership activity within it. The evidence indicates the potential use of storytelling to support patients with a life-limiting illness to lead change across the palliative care ecosystem. This challenges current conceptualisations of such patients and offers them instead as an additional source of palliative care support.
Original languageEnglish
Pages (from-to)1-32
Number of pages32
JournalOMEGA - Journal of Death and Dying
Early online date9 Jan 2024
DOIs
Publication statusE-pub ahead of print - 9 Jan 2024

Keywords

  • Palliative care, storytelling, agency

Fingerprint

Dive into the research topics of 'A two-phase qualitative enquiry into storytelling’s potential to support palliative care patient-led change, using a systematic review approach'. Together they form a unique fingerprint.

Cite this