An empirical examination of the use of Easy Read health information in health consultations involving patients with intellectual disabilities

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Abstract

Background: Easy Read health information (ERHI) has the potential to promote engagement in health care for people with intellectual disabilities. This study examined how ERHI was actually employed by clinicians and received by patients. Method: Video recordings were made of 32 patients with intellectual disabilities attending a health check with primary care clinicians who had been given access to a range of ERHI, and 9 attending a health appointment with a specialist intellectual disability nurse. The recordings were analysed using conversation analysis. Results: Easy Read health information was visible in only 7 (22%) of the primary care health checks (though not always shared with the patients). Easy Read health information was used in sequences where clinicians offered unsolicited health advice and met with degrees of resistance from patients, though its potential for shared decision making was also evident. Conclusions: Easy Read health information can aid patient understanding and decision making, but attention should be paid to the interactional practices accompanying their use.

Original languageEnglish
Pages (from-to)232-247
Number of pages16
JournalJournal of Applied Research in Intellectual Disabilities
Volume33
Issue number2
DOIs
Publication statusPublished - 1 Mar 2020

Keywords

  • accessible information
  • conversation analysis
  • Easy Read
  • health checks
  • intellectual disabilities
  • literacy

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