‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Sally Stapley; Claire Pentecost; Rachel Collins; Catherine Quinn; Eleanor Dawson; Thom Jeanette; Linda Clare

doi:10.1332/239788221X16819328227036

‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Sally Stapley, Claire Pentecost, Rachel Collins, Catherine Quinn, Eleanor Dawson, Thom Jeanette, Linda Clare

Hertfordshire Business School

Research output: Contribution to journal › Article › peer-review

Abstract

Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study is to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes describe the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.

Original language	English
Pages (from-to)	246-263
Number of pages	18
Journal	International Journal of Care and Caring (IJCC)
Volume	8
Issue number	2
DOIs	https://doi.org/10.1332/239788221X16819328227036
Publication status	E-pub ahead of print - 22 May 2023

Keywords

Alzheimer’s
caregiving
COVID-19
qualitative

Access to Document

10.1332/239788221X16819328227036Licence: Unspecified

Cite this

Stapley, S., Pentecost, C., Collins, R., Quinn, C., Dawson, E., Jeanette, T., & Clare, L. (2023). ‘Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring (IJCC), 8(2), 246-263. Advance online publication. https://doi.org/10.1332/239788221X16819328227036

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