Conceptualisation and Qualitative Development of a PRO Measure

Paul Kamudoni; Nutjaree Johns; Mir-Saeed Shayegan Salek

doi:10.1007/978-981-10-8414-0_3

Conceptualisation and Qualitative Development of a PRO Measure

Paul Kamudoni, Nutjaree Johns, Mir-Saeed Shayegan Salek

Research output: Chapter in Book/Report/Conference proceeding › Chapter

Abstract

The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).

Original language	English
Title of host publication	Living with Chronic Disease: Measuring Important Patient-Reported Outcomes
Place of Publication	Singapore
Publisher	Adis
Chapter	2
Pages	53-73
Number of pages	21
ISBN (Electronic)	978-981-10-8414-0
ISBN (Print)	978-981-10-8413-3
DOIs	https://doi.org/10.1007/978-981-10-8414-0_3
Publication status	Published - 7 Sept 2018

Access to Document

10.1007/978-981-10-8414-0_3Licence: Other

Cite this

@inbook{d3d0cf93c10245409f1f7aa297d6ab44,

title = "Conceptualisation and Qualitative Development of a PRO Measure",

abstract = "The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).",

author = "Paul Kamudoni and Nutjaree Johns and Salek, {Mir-Saeed Shayegan}",

note = "{\textcopyright} Springer Nature Singapore Pte Ltd. 2018",

year = "2018",

month = sep,

day = "7",

doi = "10.1007/978-981-10-8414-0_3",

language = "English",

isbn = "978-981-10-8413-3",

pages = "53--73",

booktitle = "Living with Chronic Disease: Measuring Important Patient-Reported Outcomes",

publisher = "Adis",

}

TY - CHAP

T1 - Conceptualisation and Qualitative Development of a PRO Measure

AU - Kamudoni, Paul

AU - Johns, Nutjaree

AU - Salek, Mir-Saeed Shayegan

PY - 2018/9/7

Y1 - 2018/9/7

N2 - The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).

AB - The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).

U2 - 10.1007/978-981-10-8414-0_3

DO - 10.1007/978-981-10-8414-0_3

M3 - Chapter

SN - 978-981-10-8413-3

SP - 53

EP - 73

BT - Living with Chronic Disease: Measuring Important Patient-Reported Outcomes

PB - Adis

CY - Singapore

ER -

Conceptualisation and Qualitative Development of a PRO Measure

Abstract

Access to Document

Fingerprint

Cite this