Abstract
The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).
| Original language | English |
|---|---|
| Title of host publication | Living with Chronic Disease: Measuring Important Patient-Reported Outcomes |
| Place of Publication | Singapore |
| Publisher | Adis |
| Chapter | 2 |
| Pages | 53-73 |
| Number of pages | 21 |
| ISBN (Electronic) | 978-981-10-8414-0 |
| ISBN (Print) | 978-981-10-8413-3 |
| DOIs | |
| Publication status | Published - 7 Sept 2018 |