Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles

Claire Goodman, Jenni Burton, Arne Wolters , Ann-Marie Towers, Liz Jones , Julienne Meyer, Adam Lee Gordon, Lisa Irvine, Barbara Hanratty , Karen Spilsbury, Guy Peryer, Stacey Rand , Anne Killet , Gizdem Akdur, Stephen Allen , Priti Biswas

Research output: Contribution to journalArticlepeer-review

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Abstract

Reforms to social-care in response to the COVID-19 pandemic, both in the UK and internationally, are
placing data at the heart of proposed innovations and solutions. The principles are not well established of
what constitutes core, or minimum, data required to support care home residents. This Personal View
argues for evidence-based principles upon which the development of a UK minimum data set (MDS) for care homes can be based. Bespoke co-produced work involving care home staff and older people working with healthcare providers is required to define and agree the format, content, structure and
operationalisation. Implementation decisions on data collection, use and onwards dissemination will determine the success of an MDS, impacting aspects such as data quality, completeness, and useability.
Care home staff who collect the data need to benefit from the MDS and see value in their contribution and residents must derive benefit from data collection and synthesis.
Original languageEnglish
JournalThe Lancet Healthy Longevity
DOIs
Publication statusPublished - 8 Mar 2022

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