Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK

Sabine N Van Der Veer; Angelo Ercia; Fergus J Caskey; Ken Farrington; Francine Jury; Michael Rees; Tim Whitlock; Sarah Knowles

doi:10.3233/SHTI200299

Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK

Sabine N Van Der Veer, Angelo Ercia, Fergus J Caskey, Ken Farrington, Francine Jury, Michael Rees, Tim Whitlock, Sarah Knowles

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

2 Citations (Scopus)

18 Downloads (Pure)

Abstract

Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients' experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it.

Original language	English
Title of host publication	Digital Personalized Health and Medicine
Editors	Louise B. Pape-Haugaard, Christian Lovis, Inge Cort Madsen, Patrick Weber, Per Hostrup Nielsen, Philip Scott
Publisher	IOS Press
Pages	936-940
Number of pages	5
Volume	270
ISBN (Electronic)	9781643680835
ISBN (Print)	9781643680828
DOIs	https://doi.org/10.3233/SHTI200299
Publication status	Published - 16 Jun 2020

Publication series

Name	Studies in Health Technology and Informatics
Publisher	IOS Press
ISSN (Print)	0926-9630

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10.3233/SHTI200299Licence: CC BY-NC

SHTI-270-SHTI200299
© 2020 European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0 - https://creativecommons.org/licenses/by-nc/4.0/deed.en_US).
Final published version, 963 KBLicence: CC BY-NC

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Van Der Veer, S. N., Ercia, A., Caskey, F. J., Farrington, K., Jury, F., Rees, M., Whitlock, T., & Knowles, S. (2020). Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK. In L. B. Pape-Haugaard, C. Lovis, I. Cort Madsen, P. Weber, P. Hostrup Nielsen, & P. Scott (Eds.), Digital Personalized Health and Medicine (Vol. 270, pp. 936-940). (Studies in Health Technology and Informatics). IOS Press. https://doi.org/10.3233/SHTI200299

Van Der Veer, Sabine N ; Ercia, Angelo ; Caskey, Fergus J et al. / Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK. Digital Personalized Health and Medicine. editor / Louise B. Pape-Haugaard ; Christian Lovis ; Inge Cort Madsen ; Patrick Weber ; Per Hostrup Nielsen ; Philip Scott. Vol. 270 IOS Press, 2020. pp. 936-940 (Studies in Health Technology and Informatics).

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abstract = "Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients' experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it.",

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Van Der Veer, SN, Ercia, A, Caskey, FJ, Farrington, K, Jury, F, Rees, M, Whitlock, T & Knowles, S 2020, Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK. in L B. Pape-Haugaard, C Lovis, I Cort Madsen, P Weber, P Hostrup Nielsen & P Scott (eds), Digital Personalized Health and Medicine. vol. 270, Studies in Health Technology and Informatics, IOS Press, pp. 936-940. https://doi.org/10.3233/SHTI200299

Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK. / Van Der Veer, Sabine N; Ercia, Angelo; Caskey, Fergus J et al.
Digital Personalized Health and Medicine. ed. / Louise B. Pape-Haugaard; Christian Lovis; Inge Cort Madsen; Patrick Weber; Per Hostrup Nielsen; Philip Scott. Vol. 270 IOS Press, 2020. p. 936-940 (Studies in Health Technology and Informatics).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

TY - GEN

T1 - Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK

AU - Van Der Veer, Sabine N

AU - Ercia, Angelo

AU - Caskey, Fergus J

AU - Farrington, Ken

AU - Jury, Francine

AU - Rees, Michael

AU - Whitlock, Tim

AU - Knowles, Sarah

N1 - © 2020 European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0 - https://creativecommons.org/licenses/by-nc/4.0/deed.en_US).

PY - 2020/6/16

Y1 - 2020/6/16

N2 - Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients' experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it.

AB - Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients' experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it.

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DO - 10.3233/SHTI200299

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SN - 9781643680828

VL - 270

T3 - Studies in Health Technology and Informatics

SP - 936

EP - 940

BT - Digital Personalized Health and Medicine

A2 - B. Pape-Haugaard, Louise

A2 - Lovis, Christian

A2 - Cort Madsen, Inge

A2 - Weber, Patrick

A2 - Hostrup Nielsen, Per

A2 - Scott, Philip

PB - IOS Press

ER -

Van Der Veer SN, Ercia A, Caskey FJ, Farrington K, Jury F, Rees M et al. Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK. In B. Pape-Haugaard L, Lovis C, Cort Madsen I, Weber P, Hostrup Nielsen P, Scott P, editors, Digital Personalized Health and Medicine. Vol. 270. IOS Press. 2020. p. 936-940. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI200299

Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK

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