Live well, die well: the development of an online, arts-based palliative care programme in the shadow of the COVID-19 pandemic

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    Abstract

    The Covid-19 crisis led to an increase in the ‘total pain’ of many terminally ill patients who faced a reduction in support, due to the temporary closure of front-line palliative day therapy services. A hospice volunteer, I instigated an online day therapy programme for patients previously attending face-to-face day therapy. Participant feedback revealed the importance of providing a space for ongoing peer support for participants’ changing sense of identity, an issue for time-limited day therapy programmes. An exploration of key concepts associated with palliative care established the multiple connections between such changing identity and arts-based approaches to living well. This article charts how I used this understanding to develop an alternative, online arts-based support programme, Live well, die well. It explores the links between ongoing mutual support, arts-based activity and the reactions to a shifting identity in patients with a life-limiting illness.
    Original languageEnglish
    Number of pages22
    JournalOMEGA - Journal of Death and Dying
    Early online date11 Apr 2021
    DOIs
    Publication statusE-pub ahead of print - 11 Apr 2021

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