1 Citation (Scopus)
76 Downloads (Pure)


Recent research on young onset dementia (formal diagnosis at age <65) evidences emerging work around pre-diagnosis, diagnosis and the need to improve post-diagnostic support for this group. An increased awareness of young onset dementia has led to the establishment of peer-support groups, support networks and the involvement of people affected by dementia in research. However, the need to join up services at the systems level persists. Third-sector organisations that offer post-diagnostic support at the communitylevel rely heavily on volunteers. Implications for policy and practice are that community-based commissioning of integrated services between health care, social care and the third sector would go a long way to providing the continuity and stability required in dementia support and care along the illness trajectory. This discussion document was written in collaboration with diagnostic services, the charity sector and conversations with people living with, and affected by, dementia.
Original languageEnglish
Number of pages9
JournalAgeing & Society
Publication statusPublished - 5 May 2020


  • Young onset dementia
  • rare dementias
  • dementia care
  • support
  • services
  • volunteering
  • community


Dive into the research topics of 'Living with young onset dementia: Reflections on recent developments, current discourse, and implications for policy and practice'. Together they form a unique fingerprint.

Cite this