Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort

Rachel Collins; Eleanor Dawson; Claire Pentecost; Sally Stapley; Catherine Quinn; Catherine Charlwood; Louise Allan; Christina Victor; Linda Clare

doi:10.1177/14713012231158215

Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort

Rachel Collins, Eleanor Dawson, Claire Pentecost, Sally Stapley, Catherine Quinn, Catherine Charlwood, Louise Allan, Christina Victor, Linda Clare

Hertfordshire Business School

Research output: Contribution to journal › Article › peer-review

Abstract

We explored carers’ experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies from carers participating in a British longitudinal cohort study. Semi-structured interview data were compared to accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles, but without appropriate support, carers risked reaching crisis point. Evidence points to a requirement for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.

Original language	English
Pages (from-to)	1-22
Number of pages	22
Journal	International Journal of Care and Caring (IJCC)
DOIs	https://doi.org/10.1177/14713012231158215
Publication status	Published - 24 Feb 2023

Keywords

COVID-19
qualitative
care services
quality of life

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10.1177/14713012231158215Licence: CC BY

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AU - Collins, Rachel

AU - Dawson, Eleanor

AU - Pentecost, Claire

AU - Stapley, Sally

AU - Quinn, Catherine

AU - Charlwood, Catherine

AU - Allan, Louise

AU - Victor, Christina

AU - Clare, Linda

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AB - We explored carers’ experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies from carers participating in a British longitudinal cohort study. Semi-structured interview data were compared to accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles, but without appropriate support, carers risked reaching crisis point. Evidence points to a requirement for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.

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ER -

Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort

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Keywords

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