Parents’ views on preparation to care for extremely premature infants at home.

Julia Petty, Lisa Whiting, Janet Green, Cathrine Fowler

Research output: Contribution to specialist publicationArticle

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Aim: To gain insight into the post-discharge experiences of parents in relation to the adequacy of preparation for caring for their extremely premature infant at home.

Method: A narrative approach was drawn on to facilitate data collection, via face-to-face semi-structured interviews, with fourteen parents of extremely premature infants.

Findings: Constant comparative analysis was employed to allow the emergence of five key research themes: Emotional and mental health of parents; uncertain outcomes; on-going health needs of the baby; education needs of health professionals; parental support and preparation for transition home.

Conclusion: Parental experience of being discharged home with a premature baby can be emotionally challenging necessitating a range of support mechanisms to assist them to cope with this period of transition.
Original languageEnglish
Specialist publicationNursing Children & Young People
Publication statusPublished - 11 Jul 2018


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