"Sometimes, it just stops me from doing anything”: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers

Silvana Mengoni, Robert Gates, Georgina Parkes, David Wellsted, Garry Barton, Howard Ring, Mary Ellen Khoo, Deela Monji-Patel, Karin Friedli, Asif Zia, Marie-Anne Durand

Research output: Contribution to journalArticlepeer-review

5 Citations (Scopus)
137 Downloads (Pure)

Abstract

Epilepsy affects 1 in 5 people with an intellectual disability (ID), but little is known about their experiences of living with epilepsy. A qualitative study was conducted to investigate the impact and management of epilepsy in people with ID.
Original languageEnglish
Pages (from-to)133-139
Number of pages7
JournalEpilepsy & Behavior
Volume64
Issue numberPart A
DOIs
Publication statusPublished - 11 Oct 2016

Keywords

  • epilepsy
  • intellectual disabilities
  • self-management
  • qualitative study

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