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"Sometimes, it just stops me from doing anything”: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers

  • Silvana Mengoni
  • , Robert Gates
  • , Georgina Parkes
  • , David Wellsted
  • , Garry Barton
  • , Howard Ring
  • , Mary Ellen Khoo
  • , Deela Monji-Patel
  • , Karin Friedli
  • , Asif Zia
  • , Marie-Anne Durand

Research output: Contribution to journalArticlepeer-review

19 Citations (Scopus)
152 Downloads (Pure)

Abstract

Epilepsy affects 1 in 5 people with an intellectual disability (ID), but little is known about their experiences of living with epilepsy. A qualitative study was conducted to investigate the impact and management of epilepsy in people with ID.
Original languageEnglish
Pages (from-to)133-139
Number of pages7
JournalEpilepsy & Behavior
Volume64
Issue numberPart A
DOIs
Publication statusPublished - 11 Oct 2016

Keywords

  • epilepsy
  • intellectual disabilities
  • self-management
  • qualitative study

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