'We are family'? Embedding patient and public involvement (PPI) in a collaborative research programme: lessons from the IMPRESS study

Julia Keenan, Fiona Poland, Helena Wythe, Jonathan Boote, Amanda Howe, Anna Varley, Amander Wellings, Penny Vicary

Research output: Contribution to conferencePosterpeer-review


We share findings from an action research project (IMPRESS: Implementing PPI in an NHS Research Programme: Evaluating the PPI contribution to CLAHRC research implementation) which studied how PPI has been implemented within a regional, applied research programme (a CLAHRC: Collaboration for Leadership in Applied Health Research & Care). This builds on findings from a previous national study (RAPPORT: ReseArch with Patient and Public invOlvement: a RealisT evaluation). Our project team includes two PPI co-researchers and an advisory group with a lay chair and further PPI representatives. IMPRESS employed a theoretical framework to explore in-depth, the experiences of PPI within the CLAHRC programme, from different points of view. Our findings identified the barriers and facilitators to the programme’s aim of ‘fully embedded, active and comprehensive’ PPI which then inform ten key action points for developing PPI in a programme.The network of CLAHRCs are planned to play a key role in co-developing and co-delivering NIHR’s PPI strategy across regions in England. The CLAHRC studied here makes policy and resource commitments to PPI, has PPI as a research theme and works in partnership with regional PPI networks. It is thus important to report systematically researched findings on processes and outcomes of this commitment, both to inform specific local action and to report broader conceptual lessons for PPI knowledge and practice.We detail, with illustrative examples, how 10 case study projects made sense of PPI, bought into PPI, enacted PPI and appraised PPI. The action research approach enables, actions and solutions to problems of embedding PPI to be ‘fine-tuned’ in further research cycles to evidence and enact sustainable PPI processes and outcomes for all stakeholders.
Original languageEnglish
Publication statusPublished - 28 Nov 2017
EventINVOLVE at 21: INVOLVE - Church House, Westminster, London, United Kingdom
Duration: 28 Nov 201728 Nov 2017
http://www.profbriefings.co.uk/involve2017/involve17programme.html (Link to programme with abstracts)


ConferenceINVOLVE at 21
Country/TerritoryUnited Kingdom
Internet address


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