University of Hertfordshire

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Original languageEnglish
Pages (from-to)415-429
Number of pages15
JournalPalliative Medicine
Early online date11 Mar 2019
Publication statusPublished - 1 Apr 2019


Background: A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good
or effective care into quality indicators that inform service development and evaluation.
Aim: To identify and critically evaluate quality indicators for end-of-life care in dementia.
Results: We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines.
Conclusions: We systematically derived and assessed a set of quality indicators using a robust framework that provides clear
definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex
interventions in end-of-life care in dementia.


© The Author(s) 2019

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