University of Hertfordshire

Conceptualisation and Qualitative Development of a PRO Measure

Research output: Chapter in Book/Report/Conference proceedingChapter

Standard

Conceptualisation and Qualitative Development of a PRO Measure. / Kamudoni, Paul; Johns, Nutjaree; Salek, Mir-Saeed Shayegan.

Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. Singapore : Adis, 2018. p. 53-73.

Research output: Chapter in Book/Report/Conference proceedingChapter

Harvard

Kamudoni, P, Johns, N & Salek, M-SS 2018, Conceptualisation and Qualitative Development of a PRO Measure. in Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. Adis, Singapore, pp. 53-73. https://doi.org/10.1007/978-981-10-8414-0_3

APA

Kamudoni, P., Johns, N., & Salek, M-S. S. (2018). Conceptualisation and Qualitative Development of a PRO Measure. In Living with Chronic Disease: Measuring Important Patient-Reported Outcomes (pp. 53-73). Adis. https://doi.org/10.1007/978-981-10-8414-0_3

Vancouver

Kamudoni P, Johns N, Salek M-SS. Conceptualisation and Qualitative Development of a PRO Measure. In Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. Singapore: Adis. 2018. p. 53-73 https://doi.org/10.1007/978-981-10-8414-0_3

Author

Kamudoni, Paul ; Johns, Nutjaree ; Salek, Mir-Saeed Shayegan. / Conceptualisation and Qualitative Development of a PRO Measure. Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. Singapore : Adis, 2018. pp. 53-73

Bibtex

@inbook{d3d0cf93c10245409f1f7aa297d6ab44,
title = "Conceptualisation and Qualitative Development of a PRO Measure",
abstract = "The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).",
author = "Paul Kamudoni and Nutjaree Johns and Salek, {Mir-Saeed Shayegan}",
note = "{\textcopyright} Springer Nature Singapore Pte Ltd. 2018",
year = "2018",
month = sep,
day = "7",
doi = "10.1007/978-981-10-8414-0_3",
language = "English",
isbn = "978-981-10-8413-3",
pages = "53--73",
booktitle = "Living with Chronic Disease: Measuring Important Patient-Reported Outcomes",
publisher = "Adis",

}

RIS

TY - CHAP

T1 - Conceptualisation and Qualitative Development of a PRO Measure

AU - Kamudoni, Paul

AU - Johns, Nutjaree

AU - Salek, Mir-Saeed Shayegan

N1 - © Springer Nature Singapore Pte Ltd. 2018

PY - 2018/9/7

Y1 - 2018/9/7

N2 - The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).

AB - The purpose of this chapter and the subsequent three chapters is to provide a step-by-step guide of how the framework proposed in Chap. 2 may be implemented using case studies based on research carried out in hyperhidrosis. Specifically, this chapter will lay the foundation for the practical chapters by providing a background on hyperhidrosis and presenting a disease model. Methods to generate and select questions for measuring PROs that reflect the experience of patients in hyperhidrosis will be presented (Steps I–II in the roadmap). A draft of Hyperhidrosis Quality of Life Index (HidroQoL) will be discussed (Step III). Chapter 4 will outline approaches to the assessment of fitness for purpose for PROs, by refining the content (Step IV) and pretesting the tool (Step V). Chapter 5 will outline procedures for assessing the performance of a new PROs against expectation (Step VI), and Chap. 6 will present a framework for integrating the conventional approach with more advanced techniques to fine-tune the tool (Step VII).

U2 - 10.1007/978-981-10-8414-0_3

DO - 10.1007/978-981-10-8414-0_3

M3 - Chapter

SN - 978-981-10-8413-3

SP - 53

EP - 73

BT - Living with Chronic Disease: Measuring Important Patient-Reported Outcomes

PB - Adis

CY - Singapore

ER -