University of Hertfordshire

Developing an Intervention to Implement Electronic Patient-Reported Outcomes in Renal Services in the UK

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Documents

  • Sabine N Van Der Veer
  • Angelo Ercia
  • Fergus J Caskey
  • Ken Farrington
  • Francine Jury
  • Michael Rees
  • Tim Whitlock
  • Sarah Knowles
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Original languageEnglish
Title of host publicationDigital Personalized Health and Medicine
EditorsLouise B. Pape-Haugaard, Christian Lovis, Inge Cort Madsen, Patrick Weber, Per Hostrup Nielsen, Philip Scott
PublisherIOS Press
Pages936-940
Number of pages5
Volume270
ISBN (Electronic)9781643680835
ISBN (Print)9781643680828
DOIs
Publication statusPublished - 16 Jun 2020

Publication series

NameStudies in Health Technology and Informatics
PublisherIOS Press
ISSN (Print)0926-9630

Abstract

Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients' experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it.

Notes

© 2020 European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0 - https://creativecommons.org/licenses/by-nc/4.0/deed.en_US).

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