Research output: Chapter in Book/Report/Conference proceeding › Conference contribution
- Sabine N Van Der Veer
- Angelo Ercia
- Fergus J Caskey
- Ken Farrington
- Francine Jury
- Michael Rees
- Tim Whitlock
- Sarah Knowles
View graph of relations
Original language | English |
---|
Title of host publication | Digital Personalized Health and Medicine |
---|
Editors | Louise B. Pape-Haugaard, Christian Lovis, Inge Cort Madsen, Patrick Weber, Per Hostrup Nielsen, Philip Scott |
---|
Publisher | IOS Press |
---|
Pages | 936-940 |
---|
Number of pages | 5 |
---|
Volume | 270 |
---|
ISBN (Electronic) | 9781643680835 |
---|
ISBN (Print) | 9781643680828 |
---|
DOIs | |
---|
Publication status | Published - 16 Jun 2020 |
---|
Name | Studies in Health Technology and Informatics |
---|
Publisher | IOS Press |
---|
ISSN (Print) | 0926-9630 |
---|
Abstract
Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients' experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it.
Notes
© 2020 European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0 - https://creativecommons.org/licenses/by-nc/4.0/deed.en_US).
ID: 22393229