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Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy. / Braun, Andreas; Kendall, Sally; Cole, Christine; Smeeton, Nigel; Angus-Leppan, Heather.

In: Seizure: European Journal of Epilepsy, Vol. 46, No. March, 31.03.2017, p. 13-18.

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Braun, Andreas ; Kendall, Sally ; Cole, Christine ; Smeeton, Nigel ; Angus-Leppan, Heather. / Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy. In: Seizure: European Journal of Epilepsy. 2017 ; Vol. 46, No. March. pp. 13-18.

Bibtex

@article{01f5d8e737b84080a283faf6eef07dca,
title = "Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy",
abstract = "AbstractPurposeQuality of life in people with epilepsy depends on balancing protection from risks and avoiding unnecessary restrictions. The Epilepsy Risk Awareness Checklist (ERAC) was developed to summarise an individual{\textquoteright}s safety, health care and quality of life and to facilitate communication between professionals. Although effective, the existing Checklist required quantification and shortening to increase its utility, particularly as a longitudinal tool for measuring and communicating changes over time.Methods5 clinical experts, 3 people with epilepsy and 5 carers assessed the importance of each item on the ERAC questionnaire in a two-round Delphi survey. The refined Epilepsy Risk Awareness scale (ERA scale) was piloted in 30 patients to obtain an overall and sub-scale score for personal safety, health care, and quality of life domains, and was compared with the validated Seizure Severity Scale and Epilepsy Self-Management Scale.ResultsERAC was shortened from 69 to 48 items to take 15–20 minutes for completion. Pilot results showed good internal consistency for the overall ERA scale, for the Personal Safety and Health Care subscales, but less for the Quality of Life subscale. There was strong association between ERA scale and the Epilepsy Self-Management Scale, but little relationship with Seizure Severity Scale scores, which focus on individual seizures. User ratings were high.ConclusionsThe ERA scale has been shortened and quantified to provide an objective measure of the risks and safety profile in people with epilepsy. The scale will be further tested for intra-rater variability and utility.",
keywords = "epilepsy, risk, checklist, seizure, scale, personal safety, health care, quality of life",
author = "Andreas Braun and Sally Kendall and Christine Cole and Nigel Smeeton and Heather Angus-Leppan",
note = "This document is the Accepted Manuscript version of the following article: Braun Andreas, Kendall Sally, Cole Christine, Smeeton Nigel, Angus-Leppan Heather, 'Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy', SEIZURE: European Journal of Epilepsy, first published online 9 February 2017. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/ . The version of record is available online at doi: http://dx.doi.org/10.1016/j.seizure.2017.02.005 {\textcopyright} 2017 British Epilepsy Association. Published by Elsevier. All rights reserved.",
year = "2017",
month = mar,
day = "31",
doi = "10.1016/j.seizure.2017.02.005",
language = "English",
volume = "46",
pages = "13--18",
journal = "Seizure: European Journal of Epilepsy",
issn = "1059-1311",
publisher = "W.B. Saunders Ltd",
number = "March",

}

RIS

TY - JOUR

T1 - Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy

AU - Braun, Andreas

AU - Kendall, Sally

AU - Cole, Christine

AU - Smeeton, Nigel

AU - Angus-Leppan, Heather

N1 - This document is the Accepted Manuscript version of the following article: Braun Andreas, Kendall Sally, Cole Christine, Smeeton Nigel, Angus-Leppan Heather, 'Development of the Epilepsy Risk Awareness scale (ERA scale) for people with epilepsy', SEIZURE: European Journal of Epilepsy, first published online 9 February 2017. This manuscript version is made available under the CC-BY-NC-ND 4.0 license http://creativecommons.org/licenses/by-nc-nd/4.0/ . The version of record is available online at doi: http://dx.doi.org/10.1016/j.seizure.2017.02.005 © 2017 British Epilepsy Association. Published by Elsevier. All rights reserved.

PY - 2017/3/31

Y1 - 2017/3/31

N2 - AbstractPurposeQuality of life in people with epilepsy depends on balancing protection from risks and avoiding unnecessary restrictions. The Epilepsy Risk Awareness Checklist (ERAC) was developed to summarise an individual’s safety, health care and quality of life and to facilitate communication between professionals. Although effective, the existing Checklist required quantification and shortening to increase its utility, particularly as a longitudinal tool for measuring and communicating changes over time.Methods5 clinical experts, 3 people with epilepsy and 5 carers assessed the importance of each item on the ERAC questionnaire in a two-round Delphi survey. The refined Epilepsy Risk Awareness scale (ERA scale) was piloted in 30 patients to obtain an overall and sub-scale score for personal safety, health care, and quality of life domains, and was compared with the validated Seizure Severity Scale and Epilepsy Self-Management Scale.ResultsERAC was shortened from 69 to 48 items to take 15–20 minutes for completion. Pilot results showed good internal consistency for the overall ERA scale, for the Personal Safety and Health Care subscales, but less for the Quality of Life subscale. There was strong association between ERA scale and the Epilepsy Self-Management Scale, but little relationship with Seizure Severity Scale scores, which focus on individual seizures. User ratings were high.ConclusionsThe ERA scale has been shortened and quantified to provide an objective measure of the risks and safety profile in people with epilepsy. The scale will be further tested for intra-rater variability and utility.

AB - AbstractPurposeQuality of life in people with epilepsy depends on balancing protection from risks and avoiding unnecessary restrictions. The Epilepsy Risk Awareness Checklist (ERAC) was developed to summarise an individual’s safety, health care and quality of life and to facilitate communication between professionals. Although effective, the existing Checklist required quantification and shortening to increase its utility, particularly as a longitudinal tool for measuring and communicating changes over time.Methods5 clinical experts, 3 people with epilepsy and 5 carers assessed the importance of each item on the ERAC questionnaire in a two-round Delphi survey. The refined Epilepsy Risk Awareness scale (ERA scale) was piloted in 30 patients to obtain an overall and sub-scale score for personal safety, health care, and quality of life domains, and was compared with the validated Seizure Severity Scale and Epilepsy Self-Management Scale.ResultsERAC was shortened from 69 to 48 items to take 15–20 minutes for completion. Pilot results showed good internal consistency for the overall ERA scale, for the Personal Safety and Health Care subscales, but less for the Quality of Life subscale. There was strong association between ERA scale and the Epilepsy Self-Management Scale, but little relationship with Seizure Severity Scale scores, which focus on individual seizures. User ratings were high.ConclusionsThe ERA scale has been shortened and quantified to provide an objective measure of the risks and safety profile in people with epilepsy. The scale will be further tested for intra-rater variability and utility.

KW - epilepsy

KW - risk

KW - checklist

KW - seizure

KW - scale

KW - personal safety

KW - health care

KW - quality of life

U2 - 10.1016/j.seizure.2017.02.005

DO - 10.1016/j.seizure.2017.02.005

M3 - Article

VL - 46

SP - 13

EP - 18

JO - Seizure: European Journal of Epilepsy

JF - Seizure: European Journal of Epilepsy

SN - 1059-1311

IS - March

ER -