University of Hertfordshire

By the same authors

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Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study. / Russell, Bridget; Troop, Nicholas; Magnusson, Josefine; Van-Os, Sandra; Hughes, Lyndsay; Robinson, G.

2012. 173-174 Abstract from International Congress of the World Federation of Haemophilia, Paris, France.

Research output: Contribution to conferenceAbstractpeer-review

Harvard

Russell, B, Troop, N, Magnusson, J, Van-Os, S, Hughes, L & Robinson, G 2012, 'Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study', International Congress of the World Federation of Haemophilia, Paris, France, 8/07/12 - 12/07/12 pp. 173-174. https://doi.org/10.1111/j.1365-2516.2012.02788.x

APA

Russell, B., Troop, N., Magnusson, J., Van-Os, S., Hughes, L., & Robinson, G. (2012). Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study. 173-174. Abstract from International Congress of the World Federation of Haemophilia, Paris, France. https://doi.org/10.1111/j.1365-2516.2012.02788.x

Vancouver

Russell B, Troop N, Magnusson J, Van-Os S, Hughes L, Robinson G. Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study. 2012. Abstract from International Congress of the World Federation of Haemophilia, Paris, France. https://doi.org/10.1111/j.1365-2516.2012.02788.x

Author

Russell, Bridget ; Troop, Nicholas ; Magnusson, Josefine ; Van-Os, Sandra ; Hughes, Lyndsay ; Robinson, G. / Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study. Abstract from International Congress of the World Federation of Haemophilia, Paris, France.1 p.

Bibtex

@conference{fe7fdddabcf040678718b48900f828ea,
title = "Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study",
abstract = "Objectives: Individuals with hemophilia and other bleeding disorders are considered to be at high risk for infection with variant Creutzveldt-Jakob disease (vCJD) and are considered to be a public health risk. Due to the current work in the UK on the development of an accurate test for vCJD, this study aimed to identify cognitive predictors of intention to be tested for vCJD once a test became available and also the services required to support this decision.Methods: Ninety men and women with hemophilia and other bleeding disorders were recruited through the U.K. Haemophilia Society. A questionnaire evaluating components of an extended Theory of Planned Behaviour (TPB) in order to predict vCJD screening was used (attitudes towards screening, subjective norms, self-efficacy, perceived control, and anticipated regret). Several models were tested using Structural Equation Modelling (SEM).Results: Intention to undertake vCJD screening was high with 65% intending to be screened. The tested structural models for the TPB all fitted well. Self-efficacy and a latent variable combining attitudes and anticipated regret components together (labelled behaviour evaluation) explained 71% of the variance in intention to screen. In terms of subjective norms, those relating to the attitudes of family and friends proved important, and those of doctors were non-significant. The effect of subjective norms on intention seemed to be mediated by behaviour evaluation.Conclusions: Identifying predictors means simple interventions can be developed that can be used to address these factors to help people reach a decision that is right for them. For example, the results suggest that development of educational information should address salient attitudes, subjective norms, and perceptions of control. In addition, outcome simulation role play would address anticipated emotional responses to testing. Significant others such as friends and family could be invited to be involved in the decision-making process.",
keywords = "haemophilia, prophylaxis, prophylactic, adherence, concordance, young, youth, boy, deliberate, unintentional",
author = "Bridget Russell and Nicholas Troop and Josefine Magnusson and Sandra Van-Os and Lyndsay Hughes and G. Robinson",
note = "Bridget Russell, Nicholas Troop, Josefine Magnusson, Sandra Van-Os, Lyndsay Hughes, G Robinson, {\textquoteleft}Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study{\textquoteright}, paper presented at the International Congress of the World Federation of Haemophilia, Paris, France, 8-12 July, 2012. ; International Congress of the World Federation of Haemophilia ; Conference date: 08-07-2012 Through 12-07-2012",
year = "2012",
doi = "10.1111/j.1365-2516.2012.02788.x",
language = "English",
pages = "173--174",
url = "https://www.wfh.org/en/page.aspx?pid=774",

}

RIS

TY - CONF

T1 - Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study

AU - Russell, Bridget

AU - Troop, Nicholas

AU - Magnusson, Josefine

AU - Van-Os, Sandra

AU - Hughes, Lyndsay

AU - Robinson, G.

N1 - Bridget Russell, Nicholas Troop, Josefine Magnusson, Sandra Van-Os, Lyndsay Hughes, G Robinson, ‘Intentional and unintentional non-adherence to prophylaxis in adolescents and young adults with hemophilia: A pilot study’, paper presented at the International Congress of the World Federation of Haemophilia, Paris, France, 8-12 July, 2012.

PY - 2012

Y1 - 2012

N2 - Objectives: Individuals with hemophilia and other bleeding disorders are considered to be at high risk for infection with variant Creutzveldt-Jakob disease (vCJD) and are considered to be a public health risk. Due to the current work in the UK on the development of an accurate test for vCJD, this study aimed to identify cognitive predictors of intention to be tested for vCJD once a test became available and also the services required to support this decision.Methods: Ninety men and women with hemophilia and other bleeding disorders were recruited through the U.K. Haemophilia Society. A questionnaire evaluating components of an extended Theory of Planned Behaviour (TPB) in order to predict vCJD screening was used (attitudes towards screening, subjective norms, self-efficacy, perceived control, and anticipated regret). Several models were tested using Structural Equation Modelling (SEM).Results: Intention to undertake vCJD screening was high with 65% intending to be screened. The tested structural models for the TPB all fitted well. Self-efficacy and a latent variable combining attitudes and anticipated regret components together (labelled behaviour evaluation) explained 71% of the variance in intention to screen. In terms of subjective norms, those relating to the attitudes of family and friends proved important, and those of doctors were non-significant. The effect of subjective norms on intention seemed to be mediated by behaviour evaluation.Conclusions: Identifying predictors means simple interventions can be developed that can be used to address these factors to help people reach a decision that is right for them. For example, the results suggest that development of educational information should address salient attitudes, subjective norms, and perceptions of control. In addition, outcome simulation role play would address anticipated emotional responses to testing. Significant others such as friends and family could be invited to be involved in the decision-making process.

AB - Objectives: Individuals with hemophilia and other bleeding disorders are considered to be at high risk for infection with variant Creutzveldt-Jakob disease (vCJD) and are considered to be a public health risk. Due to the current work in the UK on the development of an accurate test for vCJD, this study aimed to identify cognitive predictors of intention to be tested for vCJD once a test became available and also the services required to support this decision.Methods: Ninety men and women with hemophilia and other bleeding disorders were recruited through the U.K. Haemophilia Society. A questionnaire evaluating components of an extended Theory of Planned Behaviour (TPB) in order to predict vCJD screening was used (attitudes towards screening, subjective norms, self-efficacy, perceived control, and anticipated regret). Several models were tested using Structural Equation Modelling (SEM).Results: Intention to undertake vCJD screening was high with 65% intending to be screened. The tested structural models for the TPB all fitted well. Self-efficacy and a latent variable combining attitudes and anticipated regret components together (labelled behaviour evaluation) explained 71% of the variance in intention to screen. In terms of subjective norms, those relating to the attitudes of family and friends proved important, and those of doctors were non-significant. The effect of subjective norms on intention seemed to be mediated by behaviour evaluation.Conclusions: Identifying predictors means simple interventions can be developed that can be used to address these factors to help people reach a decision that is right for them. For example, the results suggest that development of educational information should address salient attitudes, subjective norms, and perceptions of control. In addition, outcome simulation role play would address anticipated emotional responses to testing. Significant others such as friends and family could be invited to be involved in the decision-making process.

KW - haemophilia, prophylaxis, prophylactic, adherence, concordance, young, youth, boy, deliberate, unintentional

U2 - 10.1111/j.1365-2516.2012.02788.x

DO - 10.1111/j.1365-2516.2012.02788.x

M3 - Abstract

SP - 173

EP - 174

T2 - International Congress of the World Federation of Haemophilia

Y2 - 8 July 2012 through 12 July 2012

ER -