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Reciprocal relationships and the importance of feedback in patient and public involvement (PPI),

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Reciprocal relationships and the importance of feedback in patient and public involvement (PPI), / Mathie, Elspeth.

In: Rheumatology, Vol. 58, No. 3, I002, 12.04.2019.

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@article{4763829b2f5745fb80c942f71ac2df6b,
title = "Reciprocal relationships and the importance of feedback in patient and public involvement (PPI),",
abstract = "Patients, carers and people with lived experience can help shape and design health research. However, those involved often do not know if their contributions have made any difference to the research. The lack of feedback from researchers to patient and public involvement (PPI) contributors is a common complaint.In this talk I will describe our CLAHRC (Collaboration for Leadership in Applied Health Research and Care), East of England study which looked at the frequency, types, importance and satisfaction with feedback within six PPI groups. The idea for the study came from PPI contributors and they were involved throughout. We found that feedback can have several definitions and early discussions of expectations is crucial. I will discuss our co-designed guidance for researchers which is being used to improve PPI feedback, provide different examples of feedback and also some of the challenges. PPI feedback needs to become integral to the research process with appropriate time and resources allocated.",
author = "Elspeth Mathie",
note = " The Author(s) 2019. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved.; British Society for Rheumatology Annual conference, BSR ; Conference date: 30-04-2019 Through 02-05-2019",
year = "2019",
month = apr,
day = "12",
doi = "10.1093/rheumatology/kez109.001",
language = "English",
volume = "58",
journal = "Rheumatology",
issn = "1462-0324",
publisher = "Oxford University Press",
number = "3",

}

RIS

TY - JOUR

T1 - Reciprocal relationships and the importance of feedback in patient and public involvement (PPI),

AU - Mathie, Elspeth

N1 - The Author(s) 2019. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved.

PY - 2019/4/12

Y1 - 2019/4/12

N2 - Patients, carers and people with lived experience can help shape and design health research. However, those involved often do not know if their contributions have made any difference to the research. The lack of feedback from researchers to patient and public involvement (PPI) contributors is a common complaint.In this talk I will describe our CLAHRC (Collaboration for Leadership in Applied Health Research and Care), East of England study which looked at the frequency, types, importance and satisfaction with feedback within six PPI groups. The idea for the study came from PPI contributors and they were involved throughout. We found that feedback can have several definitions and early discussions of expectations is crucial. I will discuss our co-designed guidance for researchers which is being used to improve PPI feedback, provide different examples of feedback and also some of the challenges. PPI feedback needs to become integral to the research process with appropriate time and resources allocated.

AB - Patients, carers and people with lived experience can help shape and design health research. However, those involved often do not know if their contributions have made any difference to the research. The lack of feedback from researchers to patient and public involvement (PPI) contributors is a common complaint.In this talk I will describe our CLAHRC (Collaboration for Leadership in Applied Health Research and Care), East of England study which looked at the frequency, types, importance and satisfaction with feedback within six PPI groups. The idea for the study came from PPI contributors and they were involved throughout. We found that feedback can have several definitions and early discussions of expectations is crucial. I will discuss our co-designed guidance for researchers which is being used to improve PPI feedback, provide different examples of feedback and also some of the challenges. PPI feedback needs to become integral to the research process with appropriate time and resources allocated.

U2 - 10.1093/rheumatology/kez109.001

DO - 10.1093/rheumatology/kez109.001

M3 - Meeting abstract

VL - 58

JO - Rheumatology

JF - Rheumatology

SN - 1462-0324

IS - 3

M1 - I002

T2 - British Society for Rheumatology Annual conference

Y2 - 30 April 2019 through 2 May 2019

ER -