University of Hertfordshire

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Original languageEnglish
Number of pages11
JournalInternational Journal of Developmental Disabilities
Early online date14 Aug 2022
DOIs
Publication statusE-pub ahead of print - 14 Aug 2022

Abstract

Infants with Down syndrome are more likely to experience feeding problems and mothers are likely to require more feeding support than mothers of typically developing infants. During the COVID-19 pandemic, many feeding support services changed from face-to-face to online, which impacted some maternal feeding experiences negatively, but no studies to date have explored the impact for mothers of infants with Down syndrome.
Thematic analysis was conducted on semi-structured interviews from thirteen new mothers of infants (aged 8-17 months) with Down syndrome in the UK. Three superordinate themes were generated: 1) Every baby with Down syndrome has a unique journey, 2) There’s no point asking, they won’t know, 3) Lack of in-person support.
Many mothers expressed frustrations over health professionals’ lack of Down syndrome specific knowledge resulting in unmet needs, further magnified due to the nature of the virtual support being offered. Moreover, mothers struggled with reduced social support from other mothers when encountering feeding problems. These results hold real-world implications for health professionals who could provide more specialised face-to-face feeding support to mothers of infants with Down syndrome. This should be prioritised for children’s overall development and mothers’ wellbeing.

Notes

© 2022 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/).

ID: 27955741