University of Hertfordshire

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The information needs of carers of adults diagnosed with epilepsy

Research output: Contribution to journalArticlepeer-review

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The information needs of carers of adults diagnosed with epilepsy. / Kendall, S.; Thompson, D.; Couldridge, L.

In: Seizure, Vol. 13, No. 7, 2004, p. 499-508.

Research output: Contribution to journalArticlepeer-review

Harvard

Kendall, S, Thompson, D & Couldridge, L 2004, 'The information needs of carers of adults diagnosed with epilepsy', Seizure, vol. 13, no. 7, pp. 499-508. https://doi.org/10.1016/j.seizure.2003.12.003

APA

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Kendall, S. ; Thompson, D. ; Couldridge, L. / The information needs of carers of adults diagnosed with epilepsy. In: Seizure. 2004 ; Vol. 13, No. 7. pp. 499-508.

Bibtex

@article{7d32309fbd1442b282b69bdd93f65ef4,
title = "The information needs of carers of adults diagnosed with epilepsy",
abstract = "Aim: The aim of the study was to explore the information needs of informal carers, and how information from health professionals can become more effective for families caring for people with epilepsy. Methods: A combined methodology was used, comprising an interview study and a survey. Twelve in-depth interviews with carers were carried out. The questionnaire was developed using the interview data, to which 70 carers responded. Results: Four main themes have been drawn from the study. • Carers{\textquoteright} of people with epilepsy have a need for improved and more appropriate levels of information giving by health professionals in both primary and secondary care • Carers{\textquoteright} perceived self-efficacy expectations in seeking information are positive but they do not always feel listened to • Carers{\textquoteright} prefer to receive information in a one-to-one setting but also need information from formats other than leaflets • Carers{\textquoteright} perceive barriers to having their information needs met, such as their needs being unrecognised in relation to the person with epilepsy.",
author = "S. Kendall and D. Thompson and L. Couldridge",
note = "Original article can be found at: http://www.sciencedirect.com/science/journal/10591311 Copyright BEA Trading Ltd. DOI: 10.1016/j.seizure.2003.12.003 [Full text of this article is not available in the UHRA]",
year = "2004",
doi = "10.1016/j.seizure.2003.12.003",
language = "English",
volume = "13",
pages = "499--508",
journal = "Seizure: European Journal of Epilepsy",
issn = "1059-1311",
publisher = "W.B. Saunders Ltd",
number = "7",

}

RIS

TY - JOUR

T1 - The information needs of carers of adults diagnosed with epilepsy

AU - Kendall, S.

AU - Thompson, D.

AU - Couldridge, L.

N1 - Original article can be found at: http://www.sciencedirect.com/science/journal/10591311 Copyright BEA Trading Ltd. DOI: 10.1016/j.seizure.2003.12.003 [Full text of this article is not available in the UHRA]

PY - 2004

Y1 - 2004

N2 - Aim: The aim of the study was to explore the information needs of informal carers, and how information from health professionals can become more effective for families caring for people with epilepsy. Methods: A combined methodology was used, comprising an interview study and a survey. Twelve in-depth interviews with carers were carried out. The questionnaire was developed using the interview data, to which 70 carers responded. Results: Four main themes have been drawn from the study. • Carers’ of people with epilepsy have a need for improved and more appropriate levels of information giving by health professionals in both primary and secondary care • Carers’ perceived self-efficacy expectations in seeking information are positive but they do not always feel listened to • Carers’ prefer to receive information in a one-to-one setting but also need information from formats other than leaflets • Carers’ perceive barriers to having their information needs met, such as their needs being unrecognised in relation to the person with epilepsy.

AB - Aim: The aim of the study was to explore the information needs of informal carers, and how information from health professionals can become more effective for families caring for people with epilepsy. Methods: A combined methodology was used, comprising an interview study and a survey. Twelve in-depth interviews with carers were carried out. The questionnaire was developed using the interview data, to which 70 carers responded. Results: Four main themes have been drawn from the study. • Carers’ of people with epilepsy have a need for improved and more appropriate levels of information giving by health professionals in both primary and secondary care • Carers’ perceived self-efficacy expectations in seeking information are positive but they do not always feel listened to • Carers’ prefer to receive information in a one-to-one setting but also need information from formats other than leaflets • Carers’ perceive barriers to having their information needs met, such as their needs being unrecognised in relation to the person with epilepsy.

U2 - 10.1016/j.seizure.2003.12.003

DO - 10.1016/j.seizure.2003.12.003

M3 - Article

VL - 13

SP - 499

EP - 508

JO - Seizure: European Journal of Epilepsy

JF - Seizure: European Journal of Epilepsy

SN - 1059-1311

IS - 7

ER -