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What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study. / Pollock, Kristian; Wilkinson, Samantha; Perry-Young, Lucy; Turner, Nicola; Schneider, Justine.

In: Ageing and Society, 06.03.2020.

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Pollock, Kristian ; Wilkinson, Samantha ; Perry-Young, Lucy ; Turner, Nicola ; Schneider, Justine. / What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study. In: Ageing and Society. 2020.

Bibtex

@article{501c4de26dd14990a9647b42fabc5b44,
title = "What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study",
abstract = "In the current ecology of care, social, rather than medical, support is critical in enabling frail older people to live at home. This paper reports findings from a qualitative study about how home care workers (HCWs) support persons with dementia living in the community. Semi-structured qualitative interviews were carried out in England with 14 family care-givers (FCGs) recruited from a single private home care provider. A thematic analysis of the data was undertaken using the constant comparative method. In every instance, it was FCGs who initiated domiciliary care for the person with dementia, highlighting ambiguity about who is the 'client'. Rather than focusing on the HCWs' work in undertaking practical tasks and personal care, respondents prioritised HCWs as companions, providing emotional and social support for their relatives. From an organisational perspective, respondents valued the capacity of the provider to deliver a consistent, personal, reliable and punctual service. These attributes were important in supporting their relative's agency and dignity. Respondents described HCWs engaging in skilled and sensitive communication with clients but considered 'character' and 'innate' caring abilities to be more important than those derived from training. The results highlight the need to acknowledge the family, rather than the individual client, as the functioning unit of care, and to recognise the highly skilled communicative and emotional work undertaken by HCWs.",
keywords = "Home care, dementia, qualitative, family caregivers, home care, qualitative, family care-givers, dementia",
author = "Kristian Pollock and Samantha Wilkinson and Lucy Perry-Young and Nicola Turner and Justine Schneider",
year = "2020",
month = mar,
day = "6",
doi = "10.1017/S0144686X20000185",
language = "English",
journal = "Ageing and Society",
issn = "0144-686X",
publisher = "Cambridge University Press",

}

RIS

TY - JOUR

T1 - What do family caregivers want from domiciliary care for relatives living with dementia? a qualitative study

AU - Pollock, Kristian

AU - Wilkinson, Samantha

AU - Perry-Young, Lucy

AU - Turner, Nicola

AU - Schneider, Justine

PY - 2020/3/6

Y1 - 2020/3/6

N2 - In the current ecology of care, social, rather than medical, support is critical in enabling frail older people to live at home. This paper reports findings from a qualitative study about how home care workers (HCWs) support persons with dementia living in the community. Semi-structured qualitative interviews were carried out in England with 14 family care-givers (FCGs) recruited from a single private home care provider. A thematic analysis of the data was undertaken using the constant comparative method. In every instance, it was FCGs who initiated domiciliary care for the person with dementia, highlighting ambiguity about who is the 'client'. Rather than focusing on the HCWs' work in undertaking practical tasks and personal care, respondents prioritised HCWs as companions, providing emotional and social support for their relatives. From an organisational perspective, respondents valued the capacity of the provider to deliver a consistent, personal, reliable and punctual service. These attributes were important in supporting their relative's agency and dignity. Respondents described HCWs engaging in skilled and sensitive communication with clients but considered 'character' and 'innate' caring abilities to be more important than those derived from training. The results highlight the need to acknowledge the family, rather than the individual client, as the functioning unit of care, and to recognise the highly skilled communicative and emotional work undertaken by HCWs.

AB - In the current ecology of care, social, rather than medical, support is critical in enabling frail older people to live at home. This paper reports findings from a qualitative study about how home care workers (HCWs) support persons with dementia living in the community. Semi-structured qualitative interviews were carried out in England with 14 family care-givers (FCGs) recruited from a single private home care provider. A thematic analysis of the data was undertaken using the constant comparative method. In every instance, it was FCGs who initiated domiciliary care for the person with dementia, highlighting ambiguity about who is the 'client'. Rather than focusing on the HCWs' work in undertaking practical tasks and personal care, respondents prioritised HCWs as companions, providing emotional and social support for their relatives. From an organisational perspective, respondents valued the capacity of the provider to deliver a consistent, personal, reliable and punctual service. These attributes were important in supporting their relative's agency and dignity. Respondents described HCWs engaging in skilled and sensitive communication with clients but considered 'character' and 'innate' caring abilities to be more important than those derived from training. The results highlight the need to acknowledge the family, rather than the individual client, as the functioning unit of care, and to recognise the highly skilled communicative and emotional work undertaken by HCWs.

KW - Home care, dementia, qualitative, family caregivers

KW - home care

KW - qualitative

KW - family care-givers

KW - dementia

UR - http://www.scopus.com/inward/record.url?scp=85082065060&partnerID=8YFLogxK

U2 - 10.1017/S0144686X20000185

DO - 10.1017/S0144686X20000185

M3 - Article

JO - Ageing and Society

JF - Ageing and Society

SN - 0144-686X

ER -